Skip to main content

My Story


 Hello Family and Friends,

Thank you for following my blog and your love and support over the years and especially now during my Journey to a Cure.  I thought I would start this BLOG by telling my story and how I got to the point where a bone marrow transplant is the next best step in my cancer battle.  And hopefully a long term, durable cure.

In September 2008, during a routine physical exam, my white blood cell count came back unusually high. The next month was busy with many doctor appointments, tests, learning, and ultimately a diagnosis - at the age of 44 I had cancer and specifically CLL or Chronic Lymphocytic Leukemia.  

CLL is usually an older patient disease, a slowly progressing disease, and at the time already had some good treatment options.  Many CLL patients never need treatment and I had the “good marker”, 13q deletion to be technical. CLL is not hereditary (although my Uncle Marc did have CLL later in his life) and like many cancers the exact cause is not well understood. 

My cancer was aggressive enough that I required treatment shortly after diagnosis.  Over the past 12 years it has been a roller coaster ride, going in and out of remission and through 4 different treatment protocols, all of which were effective and pretty well tolerated.  For the most part I kept my cancer battle private, not being interested in letting cancer win or impacting my family.  So I carried on enjoying everything that life has to offer - my amazing family, a wonderful and supportive friend group, enjoying travel and the great Colorado outdoors, and a successful career. 

But Cancer is relentless and in my case continued to evolve deeming the treatment options less and less effective.  This has led me to where I am today -  very little option for treatment other than experimental clinical trials and therefore my decision to try for a cure in the form of a bone marrow transplant. 

Thank you to all of my family, friends, and colleagues for your ongoing support over the years.  It means everything to me and is a huge part of what will make this next step in the journey a success!  I will see you all soon!

Gary

My amazing family in Ireland - Eric, Tara, Connie, Gary

Comments

  1. Love you guys! Thinking of you❤️

    ReplyDelete
  2. Sending all our love and positive thoughts to all of you ❤️

    ReplyDelete
  3. Gary, sending lots of love and light to you and your family.

    ReplyDelete
  4. Gary, remember what I have been telling you for months ... when this is successfully behind you, you will go on to be the first Grieshaber to live to 100 years old. Thinking of you and Connie everyday. Stay positive. Love you Bro! (BTW, when you live to 100 you may actually have a chance to shoot your age on the golf course ... but that still may be a stretch --- haha!)

    ReplyDelete
  5. Gary, everyone in the CPFL (Couch Potato Football League) is thinking about you and we know you are going to win! Just not our fantasy football league :)
    -Don

    ReplyDelete
  6. You are stronger and braver than you know and so much loved! Xoxox. Tane

    ReplyDelete

Post a Comment

Popular posts from this blog

Day +18: Engraftment!

The MD Anderson blood testing process is a factory.  When you go in for a blood draw, there is a bank of over 50 stations ready to draw your blood.  Combined with all the test requests from the hospital rooms like mine, from the buildings full of clinics, blood donations,... it’s amazing they can turn around results within an hour.    Yesterday (Day +17), they had a technical issue that backed up this process and had to redraw my blood late in the afternoon.   This turned out to be a godsend as the result was a White Blood Cell (WBC) count of 0.1.  This result, repeated and confirmed this morning, means I currently have 100 WBCs per liter of blood.  The average person walks around with 5 liters of blood and within the normal range of 5-10 thousand WBCs per liter.  So, I have around 500 white blood cells on the way to a normal level of over 25,000. It’s not much, but something to build upon.  And most importantly, it means the engraftment proc...

The Process

In prior posts, I’ve referred to the “process” of the bone marrow transplant.  And quite the complex, multiple step and lengthy process it is. The first step is to repeat a series of outpatient tests to confirm that I’m fit for the transplant.  This is ongoing for the week of October 5th at MD Anderson.  At the end of this testing, I will get a central venous line (CVC) inserted for the next steps and ultimately the donor stem cell infusion. I’ll check into the hospital on October 10 to begin the second step which is referred to as “conditioning”.  This involves chemotherapy to bring your immune system to zero in order to prepare for its replacement with the donor’s immune system.   During this time, the donor will be going through a procedure called Apheresis to harvest his stem cells from his peripheral blood. The cells will be cryogenically frozen and transported to MD Anderson.  The donor cells were collected on October 7 and now on the way to Houston. ...